Hello everyone
I hope this finds you well.
If you are reading this shortly after I have written it, you are probably experiencing the same view of the current weather. I sit here at my desk, listening to the gale that is blowing and the rain that is battering against the window obscuring my view of what is outside.
Thankfully though, I sit here with a hot drink all warm and dry….for now.
This will change this weekend as I am participating in a charity challenge that will see a group of us head to Snowdonia where we will attempt to climb up (and down) all 15 mountains in the area that are over 3000ft high.
All this in under 24hrs so as you can imagine, quite a long walk.
Now, when we chose a date to do this we envisaged a warm Spring weekend in May where the views would be incredible, knees would be on show in our shorts, and the smell of sun cream would ride on a warm breeze. We spoke atthe weekend (Monday to be exact, that really hot, sunny day) to finalise plans and worry about t-shirt tan lines.
Now as I sit here listening to the atrocious weather outside, horrified by the knowledge that the forecast is only to get worse at the weekend, I am seriously wondering whether this is a
good idea.
It will be tough, it will be exhausting, we will get wet, we will get blown about (hopefully not off the
mountains) and we will prob not see anything apart from our shell shocked, rain battered team mates and clouds. But hey,this will only last as long as it takes, whereas the condition that the charity is looking for a cure is a million times worse and lasts as long as it is deemed incurable.
Rett Syndrome is a debilitating disorder which most often strikes previously healthy little girls just after they have learned to walk andsay a few words and begins to drag their development backwards.
As the cascade of Rett symptoms descends, girls lose acquired skills, normal movement and speech. Girls are left unable to communicate or use their hands to hold, carry or manipulate objects.
Over time, girls who have learned to walk often lose that ability as well. Loss of motor control sets in,
essentially locking these girls into bodies that won’t work, leaving them without the ability to make purposeful movements.
This is where the charity Rett Syndrome Research Trust UK that we aim toraise funds for by doing this challenge comes in. They work tirelessly to research the disorder with the aim to someday find a cure. For more info about the charity: http://www.reverserett.org.uk/about-us
If you would like to help us raise funds for this charity by sponsoring us in this delightful challenge you can do so here:
https://www.justgiving.com/Rhiannon-Thomson1/
No pressure so don’t worry if you would prefer to as I know there are always a load of charity sponsorship things going about!
For now I will thank you for your time, apologise for the incredible lengthy post and leave you as I frantically Google search waterproof onesies and a parachute.
Many thanks!
Rhiannon 🙂
